Auditory Brainstem Response

Tomorrow, I am taking Haley to Amarillo for an Auditory Brainstem Response Test (ABR).  Before Christmas, she had failed a tone on hearing test in one ear twice.  We went to the clinic to see if she might have some fluid or something in her ear, but there was nothing, so they referred us to Amarillo.  When we went for her appointment, they did the great big hearing test!!  Well, theirs is a little more sophisticated than the schools.  On this one, she didn't hear the tones, but she heard the words at the same level.  So the doctor scheduled us to come back for another hearing test to see if it was a valid screening.  Guess what?? She had the exact same results the second time.  Now, we are going for this ABR to see what is going on with her hearing. 
A good thing about this doctor is, he is taking it one step at a time.  He said we would do the ABR, see what the results are, and then go from there.  No speculating...no putting names of bad diseases in my head so I can come home and google them and put myself in a massive panic attack!!  I think I like it...one step/test at a time and then on to the next one.  I let you know the outcome!!

Charleston Bending Brace

The time has finally arrived.  I have been waiting for and dreading this moment for the past 5 years.  I knew it was coming since I first realized Haley's back was crooked when she was 5.  Her curve has been basically holding at around 18 degrees since since we first found it.  At our last appointment in January, Dr. Johnston at TSRH said we should probably come in in 6 months instead of 9 since she is fixing to start her growth spurt.  I am glad we did!  In 6 months we went from 18 degrees to 24 degrees...if you are having a hard time with the math, that is 1 degree a month...which is significant.  With her type of curve...left "C" curve in her lumbar area...he believes all she needs is the Charleston Bending Brace which is only worn at night.  It will basically make her spine bend to the right, almost straight.  This will be very uncomfortable for her to sleep in, but she will get used to it.  I just told her hey, we start this now, you just have to wear it at night, and not all day like I had to.  Plus, it is going to be HOT PINK CAMO when mine was just plain old white.  This made her feel better, but she still said "I'm never spending the night at anyone's house again!"  She will, and with a little time she will be able to sleep just fine with it.  We go down on July 26 for fitting and to pick it up.  That weekend we will probably do whatever Haley wants to do.  She is a sweety and a fighter and this is just one battle in her life that she will overcome.

This is a picture of a Charleston Bending Brace I found on the internet.  When we get hers, I'll post some pictures of it.

Week in Pictures

We have had a busy week...We mainly only had 2 events, but they took up a tremendous amount of time.  So, here are a few pictures from this past week.

Auzlyn at the exact moment she turned 7...10:11 pm March 24, 2010

                                            Auzlyn and her cakes.

Eating cake and ice cream.

 

Opening Presents

 

4-H Fashion Show(Haley made her pajamas)
 

Posing

 

Finishing up

 

Auzlyn, Aubrey and PaPa waiting for the fashion show.